Today Caydence got her tracheostomy and G-Tube. Everything went really well and it really didn't even take them that long. They thought that the G-Tube might be a little difficult because of her omphalocele but it actually was really easy and only took about 15 min. The trach took just a little longer but from the time she left her room and the time she was back in it was only about 2 hours. I'd say that was pretty good for doing 2 procedures. Seeing her whole face with nothing on it at all is so amazing! She is such a beautiful little girl! Even though she looks so good, the tracheostomy is actually pretty hard to look at for Eric and I. It's not that bad in a way, but it really just looks like someone took a tube and stabbed it in her throat and tied some tubing around her neck. We will have to get used to it which I'm sure we will in time. Everyone keeps saying that we just have to get her past this first week through her first trach change and it will look better. Easier said than done though. This is just the first step for the next however many years. I spoke with the home health agency and they are going to start trying to find us some nurses. If all works out and we get nursing we can finally go home. She should be healed from all this in a couple of weeks and I'm pretty sure we won't get nursing and everything squared away by then, so that means most likely we will be discharged from here to CRC. We really don't want to go there but hopefully if we do it wont be very long. I'm hoping that since we are getting the process started now, it wont take too long. Hopefully we can be home within a month or so. My goal is to be home by Halloween! I am pretty scared of how all this is going to work out but we are just hoping for the best. We just want to be home!
Wednesday, September 5, 2012
Tracheostomy & G-Tube
Today Caydence got her tracheostomy and G-Tube. Everything went really well and it really didn't even take them that long. They thought that the G-Tube might be a little difficult because of her omphalocele but it actually was really easy and only took about 15 min. The trach took just a little longer but from the time she left her room and the time she was back in it was only about 2 hours. I'd say that was pretty good for doing 2 procedures. Seeing her whole face with nothing on it at all is so amazing! She is such a beautiful little girl! Even though she looks so good, the tracheostomy is actually pretty hard to look at for Eric and I. It's not that bad in a way, but it really just looks like someone took a tube and stabbed it in her throat and tied some tubing around her neck. We will have to get used to it which I'm sure we will in time. Everyone keeps saying that we just have to get her past this first week through her first trach change and it will look better. Easier said than done though. This is just the first step for the next however many years. I spoke with the home health agency and they are going to start trying to find us some nurses. If all works out and we get nursing we can finally go home. She should be healed from all this in a couple of weeks and I'm pretty sure we won't get nursing and everything squared away by then, so that means most likely we will be discharged from here to CRC. We really don't want to go there but hopefully if we do it wont be very long. I'm hoping that since we are getting the process started now, it wont take too long. Hopefully we can be home within a month or so. My goal is to be home by Halloween! I am pretty scared of how all this is going to work out but we are just hoping for the best. We just want to be home!
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