1st trip back to the hospital

Caydence spiked a fever on Friday and started acting differently like something was bugging her or hurting her. We just watched her throughout the day Saturday and gave her tylonal thinking that she was probably just teething. By Saturday night she was still just not herself and acting really agitated so we talked to Dr. Zebrack and asked what she thought we should do and she said to go to our local ER and see if they can figure out what is going on with her. So we packed Caydence and all of her equipment up into the car and headed to the ER. We get there, get checked in, go to triage and I give them all of Caydence's history and let them know what's been going on, and they are just looking at everything thinking that this little girl has had so much done to her. They get us back to a room right away and we gave the nurse a rundown on everything as well and she just looked so lost on where to even start. She took some notes and then came back with the doctor and probably 5 other people. The doctor basically told us that we just need to go back to Stanford. It's really funny to me that people look at Caydence and see everything she has had done and everything that she is hooked up to, and they are just so overwhelmed by it all. I guess that I am just used to all this medical stuff surrounding Caydence and I know her so well that it's funny seeing people look at her like "OMG, this is crazy". DMC wanted to transfer Caydence by ambulance to Stanford but we said that we  would rather just drive her ourselves since this wasn't really an emergency. We figured that if we were going back up to Stanford then we would probably be there at least a couple days so we went back home first to pack some clothes and things that we would need for Caydence on the drive up there. Getting Caydence ready and loaded up to go somewhere takes a lot of time!! So basically we had gone to he local hospital around 9:30pm and left there sometime after 1am, then went back home and left again around 2:30, finally getting to Stanford just before 5am. They were waiting for us there so they had a room ready when we got there. Once we got settled in, they tried to start and IV and get some blood drawn. They were able to get enough blood to run the basic tests but weren't able to place an IV. Her blood and urine results came back within normal range and her chest X-Ray looked great. The ER staff had called the cardiology team to come by and talk to us and decide what we were going to do. They tried to get us a room in the CVICU but they were full so they wanted to put us in PICU to just watch her for 24hours and see what she does. By the time all this talk was happening and they were figuring out room spaces, Caydence was actually looking way better than she had been. We finally decided that we didn't want to stay when all they wanted to do was watch her, especially when she would be in a unit that didn't know her. The doctors were trying to get us to stay but we really felt that she was fine. We only took her in to just make sure everything was OK. So when her blood work and everything came back normal we knew that she probably just caught a little bug or something and she just has to pass it. We finally left there sometime after 1pm and made it home around 4pm. Eric and I were so tired from staying up all night. We wanted so bad to go visit everyone since we had made it all the way up there but we just needed to get home and get some sleep. Sorry Rachelle... I feel horrible that we didn't go see you! Since we got home Caydence has been doing great! Her fever is gone and she has been resting nicely with no agitation which was great for Eric and I because we were able to crash on the couch while his mom and sister kept and eye on Caydence. Let's hope she continues to get better and we don't have to make another trip all the way back to the ER at Stanford.