Update

We have been home for one week now! Overall everything is going really well. It feels so great to have Caydence home and have all of us here together. Tanner is such a great big brother! He loves his sister so much and really wants to help out with her. He wants to hold her and play with her, and if you ask him to get something for her then he will and feels like he is helping take care of her. Even though it is nice being home, it is really crazy! I never would have imagined that our life would turn into this. We have excepted that this is what it is and there's nothing going to change it so we kinda just do it. It does really suck at times because there is so much to think about while dealing with Caydence. You can't just pick her up when you want to, you have to make sure that everything is in a position where it's not going to pull or anything else. You could pick her up and then she will start coughing and you have to put her back down just to suction her. Every four hours she is getting meds and breathing treatments. Someone always has to be right there with her watching to make sure nothing happens. Eric and I are so tired from taking turns staying up all night and rotating. I completely understand why everyone was so nervous to send us home. I'm not saying that this is too much and we can't handle it, because we can totally handle this, I'm just saying that it is HARD! The work you do with her isn't necessarily hard, it just consumes your every moment of everyday. No matter how hard this is, I don't regret pushing to go home. Being home is so much better than being in the hospital. Having nursing is taking some time to get used to, it is pretty weird having a stranger in your house and you are training them to take care of your kid. Our night shift nurse, Michael, is pretty cool. He actually caught on pretty quickly with everything we have to do with Caydence. We already had to get rid of our day shift nurse because she did not know what she was doing and we just immediately felt uncomfortable with her. We are waiting to meet another nurse to see if she will work out. But as of now we only have a night shift nurse and we handle the days on our own. We do need to find someone that we can trust with Caydence considering that we both need to get back to work before we don't have a job to go back to.