Monday, August 20, 2012
Bronchoscopy findings
Caydence went to OR this morning to have ENT look at her airways. The only new thing that they had seen is that she has some granuloma tissue surrounding where the breathing tube sits. They also saw what we already know about, that all her airways are just small and that the left bronchus branch still collapses quite a bit. So now the plan is to go to OR on Thursday and have that granuloma tissuse removed and try one last time with extubating. The ENT doctor told us that there's probably only a 20% chance of this helping. Everyone is still trying to push us to just agree to the tracheostomy. We still want to give her every shot at getting that tube out without having to do the trach. A 20% chance of working is still something, and to us it is worth trying. So I'm sure by the end of the week we will know where we go from here and what our next step is going to be. I just really hate how every time we think so positive about things they turn into something bad. By looking at the pictures from the bronch I can tell that the tissue is probably what was causing her to fail because when she would get so worked up that tissue just flops over her airway and couldn't get the air through. But looking at that left branch is what concerns me and I'm sure that is why everyone thinks that she will still end up needing the tracheostomy. With no pressure to hold it open it just completely collapses. So I think with removing that tissue she will be ok to make it with the C-Pap, but it's the trying to come off C-Pap that I think will be the problem. I want to be positive like we normally are and think that she's going to be fine and not need it, but I don't want to get my hopes up like every time before. So I really don't know what to think at this point. So we will just see what the coming weeks bring us. Like always, it's just the waiting game and playing it day by day and just hoping for some good news. We still have a long road ahead of us and it really sucks but we are trying our best to hang in there and be ok. I just wish this was all one big nightmare that we could wake up from and be over. Caydence doesn't deserve any of this and I just wish I could take it all alway and have her be a normal healthy and happy baby girl.
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I agree, 20% chance is better than nothing. You sill have your great attitude even when frustrated Still thinking about you all and wish we could be there for support.
ReplyDeleteWe agree with Heather. 20% is something, and we really wish we were closer. You are Eric are amazing, and such great parents. Caydence is lucky to have people who care about her so much! Don't give up hope!! We think about and pray for you guys often!!
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