The new plan

Her hair is getting so long we put it in pig tails!

Don't mind the ugly hospital blankets, we didn't want to send her cute ones on the road trip to cath lab.

    

Yesterday Caydence went to cath lab to get her new central line placed. They were successful in getting a good double lumen line in place. Now we have more access for when we extubate again to be able to give her TPN and her sedation at the same time. This morning she had her broviac line that has been there forever removed which went really well. She has been doing really good throughout all the procedures that she had done. They had to sedate her and raise her rate up for the procedures but had no problem getting back down on it. She's doing so well that her gasses are showing she is pretty much over ventilated even though she is on such low settings. The plan was for Monday to go down to OR and have ENT there to pull the tube and look at her airway, but since she is looking good and looking like she doesn't need that much time, Eric and I convinced Dr. Zebrack to just give her one more shot before then and just pull it tomorrow. We think that her problem was just that when the tube came out she had some swelling in there and when she got agitated and cried it swelled up more. So we talked with Dr. Zebrack about giving her more sedation this time and trying to have it as quiet as possible (meaning no 3 year old next to us). She was pretty hesitant at first just because she really wanted to be able to look down there to see if there was something that needed to be fixed and also that it will be the weekend and there is only one attending doctor covering the whole unit and anesthesia wouldn't be right there in case we had to re-intubate again. We told her that it is Dr. Wright that is on this weekend (she is one of the best attending doctors), and that Jerry the RT will be with her afterwards and Mary will be here all weekend (they are the two best RTs that know Caydence really well). After we pleaded our case she gave in. She knows too that Caydence is going to do fine but I do understand why she was hesitant. It was very difficult to re-intubate her and I know she just doesn't want anything to happen to her. We are very confident that she is going to do it all the way this time. I think that with our new plan of adding the cetamine(I don't know how to spell that) for extra sedation is going to help. We just have to make sure our neighbor is quiet (they should give her some sedation too) and that we keep Caydence as calm as possible. I hope she makes it all the way this time but I'm not going to be disappointed if she ends up having to be re-intubated again. I have been told many times that in babies that have been intubated for a long time like she has, it takes a few times before it stays out for good. It is good for her to get the practice. She has had that tube in for just about 4 months, I don't expect her to do it without any problems. She did great last time even though it didn't last long, so I know she will do it again, and for longer this time. We are still keeping our appointment for OR on Monday just in case she doesn't make again this time. But at least we will know that if she can't do it this time then there probably is something else going on in there that needs to be fixed. So tomorrow is the big day (again) and we are very excited to give her another chance. I can't wait to hear that little faint cry again :)