Saturday, August 25, 2012
Re-intubated (Yes, again)
Last night Caydence had to be re-intubated again. She woke up and got really mad and her Co2 jumped up to over 100 in a couple minutes. Her color changed and she just looked really bad really fast. With her Co2 being so high and her work of breathing the way it was, there was no choice but to put the tube back in. She did have a lot of swelling in her upper airway still which was probably playing a big part in all of this, but it seemed that her lower airway was playing a part in it too. She wasn't moving any air down below. So now I think we know where we have to go next...the tracheostomy. I spoke with Dr. Zebrack this morning about everything that went on and we are going to get a care conference set up with ENT, pediatric surgery, and the cardiology team to decide what our next steps are and what order they go in. Eric and I both are still on the fence about the whole tracheostomy thing but I think that we realize that it's what she is really going to need for the time being. As much as it sucks and we hate to think about it, I just keep telling myself that it's not forever. We will be fine with whatever happens, but I just hope that everything works out in a way that our life doesn't have to be completely thrown around (more than it already is). So now we just have to get a plan in place and see where things take us from here.
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You can do this!! [insert the video clip of Rocky running up all those stairs, here] You guys are strong..strong enough to get through this! Wishing we were closer to be more supportive, but we're rooting for all of you from Idaho!! (Is there anything we CAN do for you??)
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