Friday, August 24, 2012

24 hours post extubation

Caydence has officially made it over 24 hours post extubation! Her night started off a little rough at first with her getting agitated pretty early on, but after we suctioned out a huge mucus plug she was much better. She did great all night long. She would wake up and look around and seem pretty content. She made it past her dreaded 6am with no problems. But around 8:30 she started getting really worked up and didn't want to settle. We ended up having to give her quite a lot of extra meds and put her on a versed drip to go along with the dex. ENT looked with a small scope to see if she had any more mucus plugs like last night but she had none, just a little swelling. We didn't know why she was so worked up. It was so hard for me to see her so worked up and not able to settle. I was at the point where I told them to just put the tube back in, but to my surprise the doctor really didn't want to. She said that if we really want to give her the best chance then we needed to let her ride it out to make sure it wasn't caused by what she had done yesterday. I just didn't really  know what to think, which I still don't. I just keep going back and forth about what to do. I feel bad watching her struggle because I know that she has so much going on and that it's a very big possibility that she won't be able to keep the tube out, but on the other end I want to make sure we know for sure that she can't do it before we make any major decisions. Today has been the most emotionally draining day for me. I have no idea what all the doctors and nurses were thinking about me today because I completely broke down. I try so hard to keep a strong face and not show when things really bother me but today I just couldn't hold it back. I hate all the not knowing what comes next. I don't like feeling like I am making my daughter work so hard to prove to me what she can do. I wish there was a simple answer. Since that episode this morning, Caydence has been doing pretty good. Now we just have to wait and see what happens next and see if the swelling from her procedure yesterday is what was causing this today or if it is her left bronchus that can't handle being off the vent. All of this is really starting to get to me and it's so hard to keep it all together.

2 comments:

  1. Brook, it is okay to let go of your emotions, I did too... I cried today after the morning episode, and I am not even her mom. Hugs. It is okay to let her prove to you what she can do as well, even though it is hard to watch. It would not be fair to Caydence if we did not give her everything possible to keep the tube away. You are such a strong and amazing mom, both you and Eric. Thinking of all of you, and praying for her.

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  2. Thinking of you but you already know that. :) Caydence continues to be such a strong fighter. She has the best parents!! Keep your hopes up - she has improved so much. It's good to cry; you have so much built up stress and all the doctors and nurses know you're just watching out for Caydence.

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